Product information and disease description Place of product in therapy Disease description Burden of Adenoid cystic carcinoma with solid histology or high-grade transformation

Economic impact of Adenoid cystic carcinoma with solid histology or high-grade transformation on families

3 evidence topics · 3 sources

Summary: economic impact on families

ACC is diagnosed mainly in adults (mean age at diagnosis 57.4 years in SEER; range 11 to 99 years), so family economic impact arises chiefly through caregiving and lost income rather than pediatric care. No study of caregiver or family costs specific to ACC was identified. In a pilot survey of participants with head and neck cancer at a United States comprehensive cancer center, high financial toxicity (COST score below 17.5) was reported by 25.9% of 27 patients and 44.4% of 9 caregivers. Among commercially insured employees with oral cavity, oropharyngeal, or salivary gland cancer, 281 participants had 44.9 more short-term disability days than matched comparators.

Caregiver financial toxicity in head and neck cancer

“Research on financial toxicity has concentrated on patients despite many informal caregivers sharing finances and reducing work hours to provide patient care.” (opens the source at this quote in a new tab)
“Patients reported a median COST score of 27 while caregivers reported a median COST score of 16. Approximately 25.9% of patients and 44.4% of caregivers reported high financial toxicity (COST < 17.5). Caregivers reported high concerns about their future financial health and their ability to control the amount of their financial contributions to the patient's care.” (opens the source at this quote in a new tab)

Work loss: short-term disability and return to work

“Head and neck cancers are of particular interest to health care providers, their patients, and those paying for health care services, because they have a high morbidity, they are extremely expensive to treat, and of the survivors only 48% return to work.” (opens the source at this quote in a new tab)